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advice/anwsers?
Hi everyone,
I have lurked here for a week or so trying to learn and gather information about what my wife and I are up against,
a couple months ago my wife, Daphne, started having pains from her spleen. I think many of you know where this is going so in short. she has been to the hospital twice, once for the pain (a few days) then a week later for Pneumonia (12 days) we have missed two appts with the transplant team at U of M ann arbor because of the hosp. stays. she has seen a hematologist and he has said probable myelofibrosis, but not diagnosed, but still referred her to the transplant team without starting any treatment. her transplant (i assume a consult) is next week. in the mean time her CBC is dropping and her PCP wants to do a transfusion soon.
some of the CBC numbers have me concerned but I really don't know what is bad/not so bad, she has also had one BMB which some of the comments said- increased reticulin fibrosis, hypercellular marrow est. at 70%, no increase in blasts. can anyone tell me what this means? i.e. this is the beginning stages etc.?
her CBC earlier this week=
WBC 2.7, HGLO (sorry don't know the abbreviations) 6.8 HCRT 21.7, PLATE 26, RBC 2.96, MCV 73.3
I know this is all relative to a lot of other things but, the doctors don't seem real concerned? but from what I've read these numbers should be ringing some bells.
I would like to know what some of you that have been through this think?
also has anyone here been treated at U of M?
Thanks,
Rob
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