Hi all. My mom was diagnosed with RAEB MDS with intermediate risk on Monday morning. Although I was at the dr's office with her, we didn't know what questions to ask. The doctor referred me to
www.cancer.gov which gives some very grim and frightening statistics. After seeing those stats on the website, I started looking for more information. Thanks to some of the posts here, I now feel better prepared for the next visit - in one week. We are still waiting on the cytogenetics test and the dr. thinks the next course of action should be vidaza. I don't know what her blast levels are nor her blood counts. She has been low in platelets and RBCs which started this whole roller coaster.
I am looking for references for the best doctors in the Dallas area or in Texas and anything else that can help up fight this. Mom is 63 and has a 5 month old granddaughter to see grow up. I'm terrified of losing my mother and want to find the best ways to help her.
Thanks for reading this far....
K