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Old Thu Nov 1, 2012, 12:39 PM
PattiDean PattiDean is offline
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Join Date: Jul 2012
Location: Clearwater, FL
Posts: 171
Quote:
Originally Posted by milliken2 View Post
Patti;
Thanks Hon. Right now, I could really use a hug. That's another thing I miss - usually Earl would give me a wonderful 'bear hug' but now he says his bones hurt, and I am lucky if I get an arm around me. I am just so frustrated, and feel so useless. I just gave him his nightly Neupogen injection, and he seems to look so frail. This is NOT the way I wanted to spend our 'Golden Years" for sure. Thanks for caring.

((((Hugs))))
Beth

P.S. Hope Dean is doing better.


Beth, I just saw your post. I can understand how much you need a hug, and it is so sad that Earl isn't able to do that now. I love hugs, to receive them and give them to my family and friends. I always say good bye with a hug. Hugs lift me up when I am feeling down, so that is why I like to give them to people, to let them know I care. I know how much you need that hug!

You are not useless, you take wonderful care of Earl. I can't give Dean a shot, but you can give them to Earl. You are Earl's strength, hope, faith, love and courage, could you imagine how difficult it would be for Earl if he didn't have you in his life.

Also, you are not useless because you are also very caring and supportive to everyone on this board.

Unfortunately, this disease can make us feel useless when we watch our loved ones suffering, we want to be able to take that away, but when we are unable to do that, we can't help but feel defeated.

We will keep you and Earl in our thoughts and prayers. I wish I could reach through my computer and give you a great big hug! I can't do that, but I can send "hugs" your way, please put your arms around your shoulders everyday, and know that is a hug from me to you!

Don't give up Beth, always remember with hope, anything is possible and with faith, miracles happen.

Lots of love and hugs! Patti and Dean
__________________
Dean,age 76, dx MDS, RAEB-2, 17% blasts, June 2012 - May 2013 - Dacogen with Neupogen and transfusions as needed. End of May 2013 Dacogen stopped working. BMB July 2013 shows RAEB-2 and severe Myelofibrosis. Passed away September 30, 2013
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