Wow Cam..you have a great doctor/team. In reading all these posts - you have a great attitude as well. Have to say you are young. That I think is a good thing - according to our doctors it's one strength that Lee has in all this...when we talked to the doctor about trying something other then a BMT - one thing that was told to us several times...Lee is 56 and relatively healthy - that is a huge strength, if he got to remission through other treatments for say 5 or 10 years, that could change and perhaps he wouldn't even be a candidate. He is high intermediate and moved there from low risk quickly.
Like you, Lee had no symptoms really - he had been admitted back last october with some kind of hemoglobin problem following a flu/cold that they say is unrelated but I don't know. But in May he was just shortwinded, and got steadily worse, he had been like that in Oct to, but had a cough to back then, finally I convinced him to go to the doc who ran bloodwork and admitted him right away with hemoglobin at 4.8..they couldn't believe he actually walked on his own. They took a bone biopsy before releasing him after 5 days and four transfusions and from that biopsy found the mds. It's been quite the ride ever since, we honestly spend as much if not more time at the hospital then we do at home.
So again, the best of luck to you - I think you have a great doctor and team who will take care of you - there are soooooo many horror stories out there, it's nice to hear a good one. Keep us posted, will be praying for you and your family and watching for your posts.
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Laura, wife of Lee: DX MDS July 2012,not prod platelets or red cells, BMT Nov 13/12. Dacogen & Aranesp didn't work.
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