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Dear Beth,
I am so sorry to hear of this latest news in Earl's long, difficult saga. You have both been through so much!
When we were at NIH in Oct. I mentioned Earl to the research nurse. She said she had a stack of patients wanting to be seen that was 3 inches thick and I remember thinking it may be a while before you hear. I hope they will get in touch soon and agree to see Earl. As always - if that happens - please feel free to call on me with any questions you may have.
God Bless you both.
With love and (((hugs))),
Sally
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