[milliken2]

K;
For certain, start keeping a journal/diary of how your Mother is doing, and get copies of all of her blood work, her bone marrow biopsies, and any other test she may have done. This way, when you go to another facility, you will have all of her medical records, and they won't have to wait for things to be faxed from different facilities.
My husband had 5 sessions of Dacogen with no positive results. He is now on Vidaza - has had 3 sessions, and is due to start his 4th next week. To be honest, I don't see that it is doing anything either since his transfusion level is at least once a week for PRBC's and usually twice a week for platelets. The weeks he is on treatment - he will most assuredly get both twice during that week. He has continued to lose weight, and his appetite is low. It may be a bit 'premature' but it is a good idea to have a bottle of 'Swish and Swallow Magic Mouthwash' on hand in case your Mom starts to get mouth ulcers - this way, you have it on hand.
And make sure that you write any of your questions down - start a document on the computer, and keep adding to it as you think of another question. Then, when you do go to the Dr - no matter which one it is - you can print the questions out and take them with you. I always leave room to write the Dr.'s response down so that I can really remember what he said later on - as it can be very confusing.
Good Luck to both of you.

Beth