Thread: Cll and Exjade
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Old Sat Dec 1, 2012, 08:59 AM
marmab marmab is offline
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Join Date: Jul 2011
Location: Massachusetts
Posts: 67
Yes, watch your creatinine level. I was put on Exjade to lower my ferritin (3660). I also had low platelets (transfusion dependent, in fact). But I was able to take the Exjade for only a couple of weeks before the doctor discontinued it because of its adverse effects on my kidneys. Interestingly, I felt fine while taking it, and I don't believe it had any particular effect on my platelet count.
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Marmab, F65, SAA/hypo MDS dx 7/2011. Tried ATG/CsA, IvIG, Rituxan, prednisone, Promacta -- none of these helped. Transfusion dependent until MUD BMT 7/17/14. Prep. regimen of Campath, Fludarabine & Cytoxan. Doing great. 100% engraftment. No GVHD.
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