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Birgitta-A,
I do believe that he was taking Vidaza but I'm not positive on that. His latest BMB results say he received treatments including Decitabine if that helps. When I ask him he can never remember the name of the chemo. I spoke to him yesterday and he said they won't be doing chemo at all anymore because it stopped working. Because of his health and age they won't allow a stem cell transplant which I kind of expected when I read it was an option even before his Dr. told him about the current available options (at the time). When he first started chemo I spoke to his Dr. and was told we were only trying the chemo to try to hold off the AML for as long as possible. They were hoping for 2 years before it turned into AML with the chemo treatment but since chemo stopped working I don't know how long until it does. This is such a special condition with so little information it just makes you feel so helpless and uninformed. I was and still am so very grateful to have found this forum!! It's helped so very much it's just incredible! His next appointment isn't until the end of next month so I'll make sure to remind him when he drives in to ask his Dr. if there are any studies he can participate in in that area! Thank you so much for the suggestion!
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