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Hi Catherine, My doctor originally said that he thought I had MDS but has since back off of that call and doesn't know what I have that is causing the low counts. He did say that MDS almost never recovers on its own. My counts have improved a bit but are not all normal. He also says that the deformities in my blood cells do not map to what is typically seen in MDS there are apparently certain things that confirm mds. Two other items are blasts which I do not have and genetic changes in the chromosomes which there is a lot discussed about on these boards.
As a side note, I have my son is just starting Accutane his doctor is starting him at 40 and is one of the more cautious doctors we've been to but many wanted to start him at higher dosages and gave no consideration to other methods. But with the scaring beginning we are on to accutane. I will say that I believe if I could control what he eats I think it would clear up but I just can't make headway on that front.
I hope you get good news...
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Tom- 62 yrs old, dx-eosinophilic fasciitis 2004, 1 yr prednisone resolves EF- now low counts, HGB has been ok... EF has been associated with MDS along with AA.
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