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Brenda,
I think each MDS case is a little different. I have had low platelets, but othewise normal blood counts and am not transfusion dependent and have found travelling to be just fine. I have made phone calls ahead of time to see where I could seek treatment if needed. In the last couple of years, I have travelled to England, Ireland, France, and Germany without any real incident.
I agree that checking with your doctor about the risks and making a decision based on that risk is a good starting point.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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