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I will keep y'all in my prayers. When ever you have questions do not be afraid to contact your drs office. You are not limited to just your appointment dates. I have read over most of your posts but I am new to this site so forgive me but i was wondering have you seeked advise from other specialist as well now that things have changed?
I wish I could give you more advise. I truly hope things improve. A friend sent me this and it made us feel better. I hope it does for you. Philippians 4:6-8 then Joshua 1:9 and a personal favorite Philippians 4:13
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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