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Old Tue Jan 8, 2013, 04:48 PM
One Day At A Time One Day At A Time is offline
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Join Date: Apr 2010
Location: Lakeville, Minnesota
Posts: 2
Vidaza took awhile for me

I'm sorry to hear about Earl. I was diagnosed with MDS 6 years ago. I received Vidaza treatments for 2.5 years before it stopped working. When I first started Vidaza, the results appeared negative for 5-6 months. My blood counts continued downward and I required hospitalization for an 8 day stint due to extremely low white counts. However, around 6 months after treatments started, it suddenly started to work. Improvements were slow, but steady and I actually nearly normalized my blood counts close to 2 years thereafter. I had a quality of life that I never expected to see again.

I understand each individual with have a different reaction, but I want to add that my Vidaza treatment took 6 months before we saw a positive reaction. I had researched Vidaza prior to starting treatments and found that 4, 5, or 6 months are not uncommon for a reaction.
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Male, age 49, MDS: unclassified, Vidaza Chemo 1/2009 - 6/2011. Transplant 7/18/2011 brother donor.
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