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BMT to wait ? Or not to wait ? Can't decide
hi there , New to this site, I was diagnosed with MDS in 2001 . I am a 43 year old active male, happily married with a 8 month year old boy, I have been struggling with the decision when to go ahead with this BMT for the past 5 years now and just keep putting it off, I have tried Vidazza which did not work and get a blood transfusion about every 3 weeks now, My platelets sit around the 100 mark and white cells around the 1.5 which they have done for the past 10 years now,
I also have been on the international bone marrow regeristry for 10 years no with no success so will have to get a haplo transplant of my sister who is a half match. This causes me a lot of anxiety as I feel like my life is on hold until I get this done, On one side I am enjoying life as it is but if I wait to long it may turn into to AML , but If I go ahead with the BMT it may shorten my life and things might never be the same again, Please can someone give me a little insight so it might help me make my decision at a little easier,
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