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Hi Neil
Yes I started being transfusion dependant at the end of 2011 and started Vidazza in February 2012 , I gave it a go for 8 months, During that time I had 20 blood transfusions , developed pneumonia , and spent 1 month in hospital with 2 other infections , when I finally decided to go off the trail my counts did go up and my hemoglobins got up to 10.1 , this quickly came down in about 4 months to about .8 , so again now I am transfusion dependant again, about every 3 weeks I need to go in, Which means my energy levels are good for about 15 to 20 days then I feel like I'm very weak again. So it's hard to work and pretty much lie around a lot. Very keen to hear your reply , thanks so much
Nigel
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