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Those symptoms sound familar. When my husband was dx it was because most of those took us to the Dr. His counts as of last week
Hgb 6.4
Plts14
He had a bmb at higher counts in November and will be having his second one this Monday (bc we are seeing a new Dr, otherwise I doubt they would do them that close)
I hope that you do not have MDS. I think the only way to dx is by bmb (I could be wrong I am not as familar w MDS) AA I believe is through bmb. PNH is by a flow cetometry test by blood draw.
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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