Thread: New Diagnosis
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Old Sun Feb 3, 2013, 11:22 AM
CarlaD CarlaD is offline
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Join Date: Feb 2013
Location: Delaware
Posts: 2
Question New Diagnosis

My 76 year old dad was diagnosed this week. Had bone marrow biopsy, staged intermediate 2 with refractory anemia, neutropenia and low platelets- that is new. Has been the picture of health , still jogging 4 miles and lifting weights. We want to get second opinion re treatment. Doctor in Delaware told him he is not eligible for marrow transplant. Suggested Vidaza regime instead.
We are able to travel to a hospital that specializes in MDS, can someone give me the name of a great MD in Philly, John Hopkins or NY. They are planning to travel to Florida for a few months, so my dad wants to watch and wait. Not sure if he should, as it can convert to AML at any time and then standard treatments would be ineffective. He has not had any transfusions or meds to boost blood cell levels.
Thanks for any help,
Carla
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