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Beth, I have read how much you loved Earl and what a strong advocate you were for his treatment. May everyone have an advocate as passionate as you have been. Going forward will be difficult but you have shown you have the grit to do it. My sympathy to you in your loss.
Sue
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Sue, age 72; Dx 6/2010 MDS Int-2. Revlimid unsuccessful, began Aranesp 10/2010; additionally Dx PNH 2/2011, Soliris added 3/2011. ATG 5/2011, Cyclosporine 5/2011. Nplate 10/2011 to 10/2012 . Exjade began 12/2013 due to high ferritin level, discontinued 3/2014 because of increase in creatinine.
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