|
Elrojo
Did you ever find out your cellularity? My husbands first bmb showed 40-50 % which was not in AA range. 3/4 months later a bmb was repeated bc all of his counts were still low. It showed 5% hypocellularity. That is for sure AA. We asked how it could change so quickly. His Dr said, "there are 'islands' in the marrow that have higher cellularity, the first bmb just happened to hit that 'island' but the CBC is consistent w the 5% hypocellularity"
So after the new bmb and flow cetometry test (test for PNH)
His correct dx is AA w PNH overlap syndrome.
His first dr was reluctant to dx AA. Understandable w bmb results.
New Dr is in the Med center. At methodist Dr Larry Rice. He is incredible.
I hope you are continuing to improve!!!!
__________________
Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
|