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Hi Scully,
I don't know why this old thread (two years) was brought up, but I thought I'd chime in. ATG went pretty good (just some hives and mild flu like symptoms), and Eric went back to school a few days later. No serum sickness either. The prednisone made him a little more likely to get mad at little things, but he recognized it was happening.
I have learned so much since then, I feel like I should get college credit for hematology 101. I agree 1000% about self diagnosing from the internet!
Are you on cyclosporine now? How hard is it for you to keep out of the sun in Florida?? I hope you see results from treatment. That was the other thing that I was obsessed about for a long time: lab results. He was going three times a week, and I would make myself graphs and charts with all the information I had.
Best to you.
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Edith, mom to Eric, dx 2/11 at age 15 with SAA, began ATG/CsA 3/11, switched to Tacrolimis 8/11, off all meds 9/11 and is now considered to have bone marrow failure not otherwise specified.
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