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Shinsma,
My heart goes out to you. My husband also is getting worse every day. He was diagnosed in 2007. The last six months have been a downhill slide, now unable to walk - in and out of hospital. All cell lines down, particularly red and platelets. The transfusions never last over a week.
I will keep you in my thoughts and prayers. This disease is such a painful thing to watch. Vidaza did not help my husband either, though Dacogen did for 2-1/2 yrs. Since then nothing has helped. I hope and pray they will find a cure for this disease soon. My heart hurts for you and I just had to take a minute to write to let you know there are people out here feeling for you and thinking of you.
Much love and hugs,
Beth
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