Sheri,
I'm so sorry that your mother lost her battle and that you've lost your mother. Your "mymomismyhero" username already told us the most important thing we needed to know. This must be a very painful time for you and your family and I wish we could take away some of that pain.
It's hard to understand why Dacogen and Vidaza help one patient and hurt another. Someday science will answer these questions and we'll know exactly how to extend lives like your mother's, but for now this disease takes from us very special people who are so loved by their families. It must be even more heartbreaking because you think her care should have been better, but it's clear that the care and attention she got from you was all she could have asked for. I'm glad that your mother didn't seem to be in pain at the end, and that you and your brother were there. I'll bet you were her heroes.
When losses like this occur and we can't answer the "what if" questions, we need to somehow put them aside, along with any undeserved feelings of guilt, so we can concentrate on helping and comforting each other and remembering the best that our loved one's lives gave to us. I know it's not easy, but I hope that writing this has helped you process some of your feelings, that other families will read the advice you posted, and that you find peace despite your loss.
|