Hi Scarlett: I'd say don't be surprised that there may not be someone here with the exact same condition as yours.
For example, I have 5qdel and tri21. When I was finally given a diagnosis of low-risk MDS in early 2008, the median survival was 54 months as I recall. So here I am 60 months later and still feeling the same tiredness et al that I had back then. But I've learned to deal with it and move along best I can.
Today I had my regular 3-month visit with my doc and there has been no indication of need for another BMB and will continue on with my regular PRBC transfusions.
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Ric: Low-risk MDS (blasts <4%); 4 cycles Revlimid no positive response; PRBC transfusion dependent; so far, 392'units' over 8 3/4 years; BMB #4 (15/04/01) shows evolution to AML (blasts 20-30%
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47,XY,del(5) (q22q35),+21[24][cp24]/46,XY(1).