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Old Sun Apr 28, 2013, 05:49 AM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Treatment

Hi Ti Lee,
As far as I understand they have many very good researcher in MDS i China. Your father is probably in good hands.

If they can't find a donor they could perhaps do a BMT with umbilical stemcells.

It is not common that patients get 3 different drugs at the same time but combinations of drugs seem to give better results so we can only hope the best.

Azacitidine (Vidaza) has given better results in studies but that eventually depends on that initially Dacogen was administrated in a suboptimal way - now it is given in the same kind of cycles as azacitidine.

As you know Kirby Stone responded well to Thalidomide - in the last years combined with Dacogen. We are all different and still none of the methods that can help us to know who will respond to a treatment is available except Revlimid for patients with the chromosome aberration 5q-.
Kind regards
Birgitta-A
74 yo, dx MDS Interm-1 2006. Positive results with Thalidomide + Prednisone since 2010.
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