View Single Post
  #13  
Old Sun May 5, 2013, 10:21 PM
Bambam Bambam is offline
Member
 
Join Date: Oct 2012
Location: Vancouver, BC, Canada
Posts: 59
Thanks for all your support ... the trip went so well that after we had returned home from 3 weeks away, and with marginally better blood numbers (although statistically the same!) we stayed home for a month, then took off again straight after my monthly blood test (still stable) and returned after three weeks. Travel is food for my soul and spirit and I feel grateful that I was able to do it. My latest blood tests are a little down (although still statistically the same.) However, My Hematologist was very supportive when I saw him last week and is encouraging me to travel as much as I can.
I carried my BMB and labs with me at all times and was mostly well although I did get tired walking hills, especially when the weather was warming up. We ate early dinners and went to bed early, which when I was younger would have been unheard of, but which now is actually enjoyable! Oh, and by the way, I have been trying to apply mind over matter with regard to the MDS and to focus on positives - and unless some weird symptom appears - and it feels good!! I don't want to think of myself as ill.
Nike said "Just Do It" and I aim to keep doing it as long as I can. I hope this inspires you to take that trip you have been wanting to take and that your current diagnosis allows it.
__________________
DX MDS RA Low Risk August 2012. DX Changed to MDS RAEB1. Progressed to AML July 2013. Participated in clinical chemo trial CPX351 and relapsed four months later in March 2014. Maintenance chemo -VIDAZA (AZA) stopped after 4 rounds. Awaiting full report from BMB.
Reply With Quote