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Old Mon May 13, 2013, 05:51 PM
NLJabbari NLJabbari is offline
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Join Date: Aug 2006
Location: San Jose, California
Posts: 139
Hello Chalky.1,

In the USA, a doctor will talk to/inform/discuss an adult patient's case with a family member only with the written consent of the patient. This consent is kept on file. Also, I have a copy that I can carry with me. My 19 y-o son signed a form called, "An Advanced Directive" stating that I am his assigned "Agent" In this form, my son stated that besides himself; I too can make decisions as they apply to his care.
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06/2004 my son was dx with SAA at the age of 10. No sibling BM match. He underwent ATG (H)/CsA. Relapsed 05/12 & dx'ed w/PNH. Currently in wait/see mode for Solaris as he is asymptomatic...
Last edited by NLJabbari : Mon May 13, 2013 at 05:55 PM. Reason: Forgot to add an additonal comment
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