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I always went the the dr with my dad. I got copies of all his blood work so I could keep track of is all. Is there anyway you can go with him? Dad didn't understand his dr so I would give he and his wife the rundown of what the dr was saying. All I can tell you as his child is to read read read. Don't let it all scare you though. You may have to push for closer transfusions if you see him getting out of energy sooner than a month. please keep asking questions and posting! Good luck!
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