[wilmasdaughter]

As everyone has said, "wait and see" is kind of a buzzphrase for MDS patients, and yes it's frustrating! But there really isn't much else they can do. I have been trying to find "answers" for over 2 years for my mother - her numbers go up and down. I honestly didn't think she would last this long (she's 91) so I have finally come to peace with it, and am just grateful now for every day I have with her. Even her hematologist mentioned the other day that she's been his patient for two years now -- I think he was kind of surprised! So the best you can do is take each day one day at a time, count your blessings, and enjoy the time you have now. That doesn't mean you don't try treatments and options the doctor gives you, but it's best to come to terms with the up-and-down nature of MDS Short of a BMT, it's truly an uncurable disease. Take care.