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Old Fri May 31, 2013, 03:40 AM
JIMMYG JIMMYG is offline
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Join Date: May 2013
Location: Canada
Posts: 2
Bone Marrow Found 9/10 What To Do???

My dad is 64, we were told he has MDS in jan 2013 he is on vidaza, he is handling vidaza treatment very well. He is put on a 6 cycle treatment which occurs once a month for a 7 day period he felt a little sick at first but overal has handled the treatment well. He is going for the 5th cycle this coming Monday, he has had blood transfusions during the treatment also I would say around 4 since jan till now. His blasts and red cells have come down not normal but much better then before the treatment of vidaza. Also he is living ok he goes to work does pretty much what he's always done and is living the same as he was 2 years ago. He has changed his diet and is eatting much more healthier then before.

He is high risk MDS and with the treatment working well and his blood count getting better, we actually got put on the bone marrow transplant list last month. We are East Indian so we were advised finding a match is rare for Asian people, (as my dad has no brothers or sisters). We received a call that a match has been found last week and me and my family along with my dad attended a meeting in TORONTO CANADA AT PRINCESS MARGRET HOSPITAL with the bone marrow team. They meeting had a lot of information and had many doctors we were told they found 3 matches for him and they are all 9/10 which is good but not a 10/10 also we were advised of the side effects the procedure his long hospital stay etc etc.. BUT THE MOST SHOCKING THING IS THEY TOLD US HE HAS A 20-30% survival chance if he gets the transplant ??? Due to his age health and many other factors.

My question is why would they even call us to come to this transplant meeting?
How long can my dad just stay on vidaza?
Should he go for the transplant? As odds have been against us the whole time during MDS since JAN 2013
If this MDS TURNS INTO ACUTE LUKEMIA HOW LONG DOES MY DAD HAVE?
Has anyone recovered from acute LUKEMIA ?
I'm really worried and scared for my mom and dad I just don't know what to do?

If anyone wants to know about my experience or my dads please feel free to call me at 416-454-1116 Jimmy
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