Thread: (((survive)))
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Old Wed Jun 5, 2013, 04:56 PM
Lifeguard Lifeguard is offline
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Join Date: Sep 2011
Location: Australia
Posts: 37
Hi Alawe,

I have Del5q too and have had it for 5 years.

I take Revlimid (Lenalidomide) which works well for our type of MDS.

The survival %s are not so accurate for young people because we do not tend to have other medical issues.

And your young so a Bone Marrow Transplant may be another option for a cure.

Rachael
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Diagnosed MDS Del 5q October 2007, blood transfusions 2010, commenced Revlimid 2010. Transfusion independent.
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