Hi Alawe,
I have Del5q too and have had it for 5 years.
I take Revlimid (Lenalidomide) which works well for our type of MDS.
The survival %s are not so accurate for young people because we do not tend to have other medical issues.
And your young so a Bone Marrow Transplant may be another option for a cure.
Rachael
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Diagnosed MDS Del 5q October 2007, blood transfusions 2010, commenced Revlimid 2010. Transfusion independent.
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