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Old Thu Jun 6, 2013, 09:39 AM
vickij vickij is offline
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Join Date: Apr 2013
Location: Connersville, Indiana
Posts: 117
Is Remission Possible with MDS ?

Has anyone with MDS gone into remission ? I went to Dr at IU hospital on Monday thinking that I would get results of tests & final instructions for transplant that was set for June 24th. They did blood work before my appt. When Dr looked at results of blood counts he said my counts were all in normal range. My hemoglobin has been 11.5 for over a mo. Other counts were good too. When I mentioned that I had taken revlimid for 2 weeks last mo. he got excited & looked at list of other meds I was taking. He saw that I was taking prednisone 5mg ( 1 a day) & cyclosporine 25 mg ( 2 twice a day) and I had ATG in April 2012. He thinks it is possible that the revlimid combined with the other treatments and kicked in a response. He said he was putting transplant on hold until he gets results of blood work that he wants me to have on June 10th. He also wants to test cyclosporine level. Dr said he has only seen this happen once before. I was thrilled & in shock. Now I am really nervous about results of next blood tests. His nurse told me to go ahead and prepare for transplant ,just in case. Scared & Nervous.
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62 yr old female. dx AA 3/12.treated with ATG 4/12.dx MDS 4/13. MUD BMT on June 25th,2013
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