Hi Curlygirl,
You mentioned Dr. Neal Young at NIH and what I assume is Promacta (Eltrombopag) for platelets.
If you are interested please read my posts under Clinical Trials. This drug and NIH performed close to a miracle with my husband Don (he has MDS). They had such success with their AA patients that they decided to try it on MDS patients. Don was their first MDS guinea pig and he has been transfusion independent for almost 2 years after having over 125 platelet/RBC transfusions.
NIH is a wonderful, healing place on the cutting edge. And Dr. Young is considered the #1 hematologist in the world. They have a beautiful facility for children and their families to stay.
If you have any questions about NIH should you decide to go that route, please feel free to contact me at
shcalvert3@aol.com.
I wish your David the best!
God Bless,
Sally