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Dacogen
Hi Shirley,
Most doctors continue treatment with Dacogen or Vidaza as long as the patient is responding. I don't understand why your oncologist stopped the Dacogen treatment.
Now we hope that you will respond to Vidaza. You know most of us can't feel if our WBC or platelets are low. Your neutrophils are too low - perhaps you could get more Neupogen?
You manage well with HGB 9.5 - probably your heart function is good.
Kind regards
Birgitta-A
74 yo, dx MDS Interm-1 2006. Positive results with Thalidomide + Prednisone. I have felt fine all these 7 years except when I had neutropenic fever 2007.
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