I'm in remission!
Hi. I was on watch and wait til last June, 2012 when I was put on Revlimid. I was on full dose for only 2 weeks, then half dose for another month. Then I developed severe hyperthyroidism from the drug and had to stop it. My HB stayed in the 10's for a while and I had Aranesp injections as well before that. Now my HB ranges from 10.6-11.5 this week. My honc does say that I am in remission and she suspects another BMB would not show any clones. She says it is nothing short of miraculous! I do have a history of being VERY sensitive to drugs. I have not had any treatment at all since last August! I do realize that some day this will end and I will have to go back on the Rev., and probably with Prednisone also to protect another thyroid reaction. She jokes that next time all she's going to do is write the word Revlimid on a piece of paper and stick it to my forehead, as I am so sensitive apparently! Til then I will just keep on *carpe dieming*.
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Margaret, age 68, dx MDS 5 q- 5/09- now RCMD; also MGUS. TP53 and TET2 mutations
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