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We start our 8th cycle of Dacogen Monday, we have had zero improvement in blood count numbers, for some people that is the trade off, Dacogen keeps the leukemia surpressed but on the flip side keeps your counts low, we get 2 bags of blood and 1 bag of platelets per week, just keep an eye on your moms counts, if you see a change in her disposition keep an eye on her tempture, temps are a tell tale sign of what an infection is doing. Basicly what im trying to say is if on Dacogen for 7 months where ever your counts are at now COULD be your new normal limits, it helps to keep a spread sheet of your blood reports so you can compare results, if you have a computer you can do this easily on excell it really helps when trying to see how the counts are reacting to treatment
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Billy - Husband of Tina: 31 years old at dx - June 2007 - Stage 3 Breast Cancer - Dec 2008 Stage 4 - Brain and Bone - Nov 2012 - Therapy Related AML. Curently on Decitabine for Therapy Related AML and Herceptain for ongoing Breast Cancer. Weekly transfussions of blood and platelets
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