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What to do?
MDS such wide spectrum of patient experiences and outcomes.
I'm new to forum and have am still feeling around. Seems like a lot of great people.
Diagnosis at 7% blasts 11/12. The 9% in 3/13.
I was given the possibility of ATG/Cyclosporine treatment, I have low cellular marrow and hl15?, but I'm not sure It would be the best treatment, nor does my doctor, especially when I have stem cell donors available. And other chemos too. But how does one decided. I'm young (51) and a pretty good sized guy at 6' 230lbs. So I may appear able to handle a lot. Should someone go for stemcell why in very good health or work with treatments to improve counts. Or hope blasts stay steady and go with ATG/C
I still feel great and am have no problems.
FYI. My father past away at 56, 25 years ago. MDS then AML
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Male 56, MDS 2008, pre SCT Hypocellular 5-30%, Normal Cytogenetics. WBC 500, anc 45, Blasts 15%, Platelets 45, HGB 7, RBCC 1.71, HCT 20.5, MCV 120. Became Transfusion dependent 3/2016. 5 cycles VIdaza started 3/14/16 which reduced Blast counts. . Marrow Transplant 9/1/16, Hereditary MDS/AML.
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