Thread: Bmt s
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Old Tue Jul 23, 2013, 01:43 AM
Heather8773 Heather8773 is offline
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Join Date: Jan 2013
Location: Houston, TX
Posts: 254
Thank you both so much for the information!
Did/do either of you have a method of keeping everything organized? I'm unfortunately an unorganized person. I know that sounds very broad but any tips would be appreciated
Brian that is a good tip about the dental. I was shocked and disappointed that a quick glance in my husbands mouth wasn't part of the pre transplant testing/physical. It seems a bit reckless to completely restart someone's immune system w/o considering the potential bacteria, infection, abcesed tooth etc possibilities.
I will look up mucositis thank you and I really appreciate the calorie, getting on your feet and banking advise!
When do they discuss and what is pre transplant conditioning?
I hope y'all are well and thank y'all again!
__________________
Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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