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Old Thu Jul 25, 2013, 09:18 PM
Bambam Bambam is offline
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Join Date: Oct 2012
Location: Vancouver, BC, Canada
Posts: 59
From MDS to Skin Lesions to AML

Well, my worst fears have been confirmed. My low-risk MDS, diagnosed one year ago, has changed to Acute Lyeloid Leukemia. I felt the changes in April, when I started to notice the skin lesions on my neck. Since then, I developed a swollen top lip, lumps and bumps all over my face, and in random places on my body ... some of them very itchy and some very sore. We're still not sure what the skin things are, despite suspicion of Leukemia Cutis from skin biopsy, but I must now prepare to go into hospital for up to a month for chemotherapy. Scared but glad I'm in excellent hands at Vancouver General Hospital.
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DX MDS RA Low Risk August 2012. DX Changed to MDS RAEB1. Progressed to AML July 2013. Participated in clinical chemo trial CPX351 and relapsed four months later in March 2014. Maintenance chemo -VIDAZA (AZA) stopped after 4 rounds. Awaiting full report from BMB.
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