Quote:
Originally Posted by MagicBob
Patti, we are happy that Dean is going to Moffitt, they have a great team that
specializes in MDS.
We pray that God removes Dean's fears and gives him the strength to face each day. When we are weak, and short of breath it does scare us, and like Dean our ages of 76 adds to our struggles.
Our drive to Johns Hopkins is a only a 90 minute drive; our daughter Beth will be arriving on Friday from Hartford, Ct. and will drive us to the hospital next Monday.
I am scheduled for a CBC on Wednesday and hoping the counts have improved to where I won't have the need for any transfusions.
Our very best and strong thoughts and prayers to you and Dean, and tell him that we need to hang in there together.
Dru and Bob
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Hello Bob and Dru,
Thank you for your kindness, prayers and supportive words. Dean had his labs today, all counts went down since Thursday, but we expected as much. Because Dean has to go to Moffitt tomorrow, he won't get transfusions of PRBC and platelets until Wednesday and Procrit on Thursday.
Dean asked me today if I had heard from you, he feels comfort knowing that someone else understands what he is going through. He says sometimes MDS feels like a very lonely disease.
Dean keeps telling me he feels as though he has aged ten years since finding out he has MDS. He actually was doing very good for a few months, was strong and had a good appetite, the last two months have been the hardest since we first found out he was sick.
We will keep you and your family in our thoughts and prayers for your visit to Johns Hopkins on Monday. Hopefully you and Dean will both receive some welcome news, you both need it so very much.
Dean says he will hang in there with you Bob, you both have a 77th birthday to celebrate! What month were you born? Dean is February.
Love, hugs, faith, hope and prayers to you and Dru,
Patti and Dean