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Isander, waiting for test results to know what your up against was one of the worst parts for us. W those counts it could be MDS or something else. The BMB (bone marrow biopsy) results will Give y'all answers. I hope y'all get them soon!
Why dose your fathers dr suspect MDS? My husbands dr would Not let out one clue what he suspected until after the BMB.
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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