[LizR]

Patti-

It can be so frustrating to try to communicate with the Dr. and his office. Getting answers and having your Dr. take your concerns and questions seriously is so important. Our local Dr. is usually very helpful but on a busy day he will try to gloss over some things important to us that we might not know. We've found just saying "I'm confused", whether you are or not, helps slow things down to get your questions answered. Our Mayo Dr. and our local Dr. don't always agree either.

With the PBRC transfusions, when Bob gets 2 units in the same day, it lasts longer and gives him more energy than getting them on separate days. He doesn't get platelets so that could be a difference from your case but it could be something to try.

I think that's the bottom line. If there is a next thing to try, there is hope and who doesn't want a little hope?

Sending hugs and prayers to all patients and caregivers today!