Quote:
Originally Posted by bebop
All of you going thru this is in my prayers. I remember well the rollercoaster ride with my Dad. It is not fun at all. So many questions and little answers. May God Bless you all right now! Much love.
Elaine
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Thank you Elaine.
Dean is so weak, I have to help him shower, shave and dress himself, because doing these activities exhaust him. He has had three transfusions in the last two weeks, but they don't seem to be helping, his counts improve slightly for a day or two, then go right back down.
Dean wants to keep trying, he says he doesn't want to leave me yet, he knows we only have each other and I will be alone when he is gone. He is hoping he is strong enough to try the trial, but in the back of our minds, we don't think he is. Also, Dean would be willing to try Vidaza, even though the doctors say it won't help, since he responded to Dacogen, and it stopped helping after a year. Dean still wants to give it a try, if he can't do the trial study.
We don't want to believe this is the end for Dean, because the doctors told him he doesn't have many options. It is sad to hear how people linger for weeks or months near the end stages of MDS, that has to be the most difficult part.
Dean did so well for a few months while on Dacogen, so we were blessed to have that time. I guess we are selfish because we just want to have a little more time, but not at the risk of Dean suffering.
Thank you again Elaine. I know it was awful for you watching your dad going through this.
Love and hugs, Patti