Quote:
Originally Posted by bebop
Patti Dad didn't really just linger really. They stopped his transfusions because there were not working at all anymore. he got 2 units of blood per week but platelets he got 2 times per week. They simply did nothing at all for him. I am so thankful that 15 minutes before he passed he was laughing with me. He passed standing up in my arms. I will forever be greatful.
I say if Dean is not ready to stop then don't. Keep going as long as he wants to. I pray that something works for him. do you have a wheel chair and/or a walker for him? if not I have both. just let me know. My heart is with you.!
Elaine
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Hi Elaine,
We just returned from Dean's appointment with his oncologist and we have decided to go with the trial in Moffitt. Dean's oncologist feels Dean should be able to get through the pre-testing, and hopefully qualify. This is the only option for Dean at the moment, although if Dean doesn't qualify for the study, his oncologist said they will then try Vidaza.
Thank you for the offer regarding a wheelchair and walker. Thankfully we have a walker for Dean. His oncologist said he would rather Dean use that instead of a wheelchair because he wants him to use his muscles in his legs.
He is also having a physical therapist come in three times a week.
So Dean feels a little better right now, he is happy that his doctor feels he should be able to do the trial, that gives him hope, and that is all we need right now.
Dean's blood counts weren't great, his platelets were 10, so six units of platelets tomorrow. Thursday is more labs since Dean's hemoglobin was 8.3, probably will be getting PRBC on Friday.
We have to get an email off to Moffitt to let them know that Dean wants to be a part of the clinical trial. It will be a busy month with all the testing, but being busy keeps our mind off of everything else.
Love, hugs, faith, hope and prayers,
Patti and Dean