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Old Thu Aug 8, 2013, 06:06 AM
PattiDean PattiDean is offline
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Join Date: Jul 2012
Location: Clearwater, FL
Posts: 171
Quote:
Originally Posted by Susan L View Post
Hi - went to the doctor yesterday - he told me I also have Fibrosis of my bone marrow at grade 3 which he said they grade 0 to 3. They are making an appt at Northside Bone Marrow transplant center to see what options I can have. Hoping for the best as I have no family so I dont know if an auto. stem cell transplant would be an option. Any comments welcome as I am lost right now.

Oh Susan, we are so sorry to hear that you also now have Myelofibrosis. Like you, they told Dean he had grade 3. Dean and I have each other, but no family, it isn't easy when you are dealing with this terrible disease. Many people on this forum have become like our family, and we are so thankful for them.

Hoping you can receive information from our supportive and knowledgeable forum members regarding the stem cell transplant option. Wish Dean and I were able to do more for you.

Sending you lots and lots of love and hugs, along with our thoughts and prayers,

Patti and Dean
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Dean,age 76, dx MDS, RAEB-2, 17% blasts, June 2012 - May 2013 - Dacogen with Neupogen and transfusions as needed. End of May 2013 Dacogen stopped working. BMB July 2013 shows RAEB-2 and severe Myelofibrosis. Passed away September 30, 2013
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