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Liz,
John too did desferal. His dose was 1500mg, every night, for 5 days each week. We have the same understanding as Kevin that you have better results with a very slow infusion over multiple days. We knew a patient who did it 24hr/day every day.
John could only do it for three weeks and would then need to take a break because he became so nauseated from it.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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