Quote:
Originally Posted by PattiDean
Bob, Dru and family,
Dean and I want you to know that you are in our thoughts and we are keeping you in our prayers as you go to Johns Hopkins.
(((HUGS)))
Patti and Dean
|
Hi Patti and Dean,
I was trying to respond sooner, however we have been mentally and physically kaput!
Our visit to Johns Hopkins on August 5th was a very difficult and long day, as news wasn't good, beginning wiith very low WBC 0.7, ANC 0.3, PLT 7.
Then met with the MDS specialist, and he informed us the bone marrow isn't producing enough good cells and Chemo is no longer active. Also, stated that "I don't have any other type treatments to offer". But I want to do an
aggressive transfusion plan for the next 60 days, in hopes that it may start to stimulate marrow.
I started the transfusions on August 9th, and will continue every week, with
CBC and Oncologist every Monday and Thursday, Platelet transfusions every Tuesday and Red Cell and Platelets every Friday.
If no response, there is a Clinical Trial starting late September, and the Doc gave us 13 pages to read, and digest.
Lastly, the doctor said that I can't let you go back to Pa. with a Platelet count of 7. So, at 4pm I was given 12 units of Platelets, and began our drive back home and all hell broke loose. I got the chills and then went into violent shaking (Rigors).
We were about 5 blocks from the hospital and our daughter did a U-turn back to the hospital. Three hours later we were on the road again, and arrived at home at 11pm.
I have been reading your other posts and hope to respond to you later.
Give our very best to Dean.
Your are both in our prayers,
Bob and Dru