Quote:
Originally Posted by Susan L
Hi - I was wondering if you decided for the BMT? I went for my evaluation and had another biopsy today and waiting for a call as to when I can be admitted. I understand I will have chemo first then hopefully the blasts will be down and I can go ahead with the search for a transplant. I am feeling positive with this. Only thing bothering me is the stay is going to be all inpatient and I will need a caretaker to stay with me 24/7 while in the Hope House - and that will be for up to 100 days. We are all by ourselves and wonder if they sometimes they have people that can help with staying while the spouse has to take care of things at the house ?
|
I decided No. You can send me a PM on why. What kind of chemo first to get the blasts down?
Did they tell you how long it takes to get preliminary matches?. The way cornell weill works is they take your blood hla, then do a preliminary which takes 2 to 3 months(That's what they told me an dhow long it took). Then they'll do more extensive tests to see how good the match is. The preliminary is free, but the more extensive one to see how good the match is cost around 3k, some insurance co pay some don't, if they don't then if your income is less than your outcome(I made that word up just now) then they have grants to pay for it. This is important because it could take a bunch of donors to test before they find a good match and something that can cost a few bucks. As far as 24/7 care I know you can get it thru some agencies but haven't researched it enough. Its overwhelming, I know..Deep breaths...one day at a time..