Quote:
Originally Posted by PattiDean
Hi Bob and Dru,
I saw your email yesterday, and sent a reply to your email address. I hope you received it. If you have a chance, please let me know.
We are so sad to hear you are not doing well, you need some good news, that's for sure. When will you find out about qualifying for the trial at Johns Hopkins. Waiting and wondering is so difficult.
Dean is off to labs in a little while, wanted to reply to you before we left. Do you have labs today? Dean's platelets dropped to five a week ago, but they came up a little after the single donor transfusion. We will find out how the numbers are in a little while.
As always, keeping you in our thoughts and prayers down here.
Sending you lots of hugs, faith and hope, along with a little laughter.
Patti and Dean (((HUGS)))
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Hi Patti and Dean,
We think about you all every day, and hoping Dean is doing better than myself.
Blasts increased to 20, and Platelet transfusions are becoming less effective and both the MDS specialist at Johns Hopkins and my Hematologist are not very optimistic.
On Sunday afternoon, I noticed black stools and went immediately to the emergency room, diagnosed with internal bleeding. I was admitted and spent the next three days receiving transfusions.
Tuesday morning's visit by my Hematologist was a bad day; with Dru and our daughters present he informed us that there wasn't any more he could.
Suggested that we talk with the hospital case worker and to make arrangements for home care.
Discharged yesterday, and this morning we all met with the Visiting Nursing Association.
We are still fighting and kicking, and you all will be updated, either by me or my daughter, Beth
Our Love, Faith, Hope and Prayers,
Bob and Dru MagicBob