Quote:
Originally Posted by MagicBob
Hi Patti and Dean,
We think about you all every day, and hoping Dean is doing better than myself.
Blasts increased to 20, and Platelet transfusions are becoming less effective and both the MDS specialist at Johns Hopkins and my Hematologist are not very optimistic.
On Sunday afternoon, I noticed black stools and went immediately to the emergency room, diagnosed with internal bleeding. I was admitted and spent the next three days receiving transfusions.
Tuesday morning's visit by my Hematologist was a bad day; with Dru and our daughters present he informed us that there wasn't any more he could.
Suggested that we talk with the hospital case worker and to make arrangements for home care.
Discharged yesterday, and this morning we all met with the Visiting Nursing Association.
We are still fighting and kicking, and you all will be updated, either by me or my daughter, Beth
Our Love, Faith, Hope and Prayers,
Bob and Dru MagicBob
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Dear Bob, Dru and family,
It is so very sad to read your post, Bob. We wanted to hear good news for you and your family.
Bob, we never know how strong we are until being strong is the only choice we have. You are so very strong, you are giving your family the strength to keep fighting and kicking.
It has been a long week for Dean, but we have a little hope. Dean's oncologist said he wanted Dean to try Vidaza, even though the Dacogen stopped working. This week was Dean's first treatment. We won't know for awhile if it is helping or not.
Dean has received transfusions everyday this week, along with the chemo, so we have had eight and nine hours days. Dean's platelets dropped to 3 on Wednesday and his hemoglobin was 7.1 yesterday. Dean received PRBC on Tuesday and today, and platelets Tuesday and Thursday. We now have a long week end ahead of us before labs again.
Are your arms bruised? Dean's arms look awful. He is still very, very weak and short of breath. Vidaza is Dean's last option, after that he will only have transfusions, and we are not sure how long they will help.
You both are heroes to those who love and know you. Dean never complains or gets angry, just sad and scared at times.
Bob and Dru it is very difficult to find the words to tell you how we feel. Please know that your posts have meant the world to us in these last few weeks. Everyday Dean asks "Did MagicBob post something today?". Even though we have not met, Dean feels a very special connection with you.
We will keep you and your family in our hearts, thoughts and prayers. We have to keep having hope, and with faith and prayers that is possible.
Lots and lots of love and (((HUGS))) for you, Dru and your daughters!
Patti and Dean