Hi all -
Howdy - Been in a bit of a whirlwind with everything since the eval day. Diffenately going into AML - so transplant only option. Had such a good talk with the doctor Dr Larry Morris at Ga Bone Marrow Transplant group and he is straightforward and honest - which I love. Went back Thursday for another BMB - and now Dr said if he doesnt call me Monday call him Tuesday for info on when will be admitted. I will be having 4 to 6 wks of chemo - then go to the Hope Lodge to get stronger and hopefully move onto the transplant - Now I know things never go to plan I feel right about it. I am scared - and I dont want to leave my husband and home - for the wks and still dont have my head wrapped around the possibility of being at the lodge for months ---- woke up each night and said oh no this is not going to happen then try to calm down. My biggest worry - among many things - is they say you need someone with you 24/7 at the lodge - I do not have anyone but my husband and he is not able to just leave our home and 4 dogs - who can just leave - so I am trying to find out how I can find volunteer caregivers that can stay and take me to the transfusion place --- just dont know where to find that help yet. Hope everyone is dealing w/their dx and keeping all at bay. Love to all - Susan
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Susan Patient, 58, MDS, UPDATED 9/13
Now have RAEB-2, Firbrosis 3+, blasts 18% peripheral, 10 - 14% blasts marrow, chromosomes now T 1:21, trisonomy 16 and 1.- Match found ---10/10 -couldn't believe when I heard - Tentative day is 1/09th!!!! Admit date changed to 11/12. WOW -
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