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Old Sun Sep 1, 2013, 10:36 PM
Honeybun Honeybun is offline
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Join Date: Aug 2013
Location: Perth Western Australia
Posts: 90
Unhappy What is going on???

For the last few days I have just been so breathless. Yesterday was the worst, chopping fruit in the kitchen required a lay down, which was short lived and ended up vomiting. I am also getting muscle spasms on my eye and lip, as well as in my fingers. Boy they can bend back rigid or do the Vulcan V sign (which I can't do normally} and stay like that for a while.

Again today more vomiting and breathlessness (like I have done a marathon).

I went to the doctors today and he has referred me to the hospital to check my levels. Just waiting for my ride.
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Dx June 2013 MDS del 5q and 7t. Further chromosone changes August 2017. Lenolidomide and 10 months on Azacytadine failed. Transition to AML August 2018 failed induction chemo. Trial drug FT2101 failed at 6 months. Next on Venetoclax with cytoterabine.
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